Not going down without a rant …
22 Dec 2014 6 Comments
My tolerance for whining is minimal, so I try not to do it.
Just the facts then.
If you’ve never experienced an auto-immune disorder there’s no way to explain it to you, but I’m willing to try because at least a dozen people on my Facebook feed, including me, deal with fibromyalgia and/or other auto-immune malfunctions on a daily basis. If you’ve somehow formed the opinion that we’re lazy, unmotivated, hopeless weenies, at least scan the information below. Most of us, like you, have dreams and plans, if only our bodies would get in the game.
Part of the frustration that comes with fibro is its unpredictability — one day you’re flying high, the next you can’t get out of bed. More often, the transition takes place between one hour and the next. A second frustration is that, plan as you might, there will be social opportunities missed and projects that never really get off the ground. A third, if you can call it a frustration, is that when flares hit they’re fairly relentless and the prolonged pain and hypersensitivity in bones, joints, muscles, tendons and other soft tissues let you know that everything is on hold for a while. A fourth is that while researchers are on the brink of several breakthroughs, the root causes of fibromyalgia remain elusive, ergo no effective treatment yet.
I’m blessed that my husband gets it and doesn’t see me as dead weight to haul around, but not all are so fortunate. It can be a lonely walk, so for friends and family who have to carry the burden of all we DON’T know about the auto-immune spectrum in general and fibromyalgia in particular, here are the fruits of my highly-personal, mostly-unscientific research into the disorder known among the ranks as “the invisible beating.” (Click pics to enlarge.)
Omigosh, you’re still here? You are either a really caring soul or you have a vested interest in the subject, or both. We can all help make things better for each other — that’s the truth. I’m glad you’re a part of that …
Sometimes you just go ahead and dance …
16 Dec 2014 3 Comments
So I noticed a weird little goober on my lower eyelid, oh, months and months ago and when it started to resemble an expanding snot bubble I made an appointment with a specialist — I’m not one to rush into things unless it’s something I really want. Anyway, today was as much fun as a poke in the eye with a sharp needle — biopsy done and now we have the inevitable wait. But even if it’s basal cell, as Dr. Specialist surmises, it won’t be a biggie — Dr. Specialist #2 will biopsy the whole thing in layers and if I end up with a divot in my eyelid Dr. Specialist #1 will Bondo it for me and my eye will be good as new. Also basal cell carcinoma doesn’t metastasize or send out runners. Yay!
Hey, it’s Tuesday, the day we dahnce, dahlings, and I say we get on with it. Choose your libation — I’m having NZ Starborough Sauv Blanc — and distract me while the anesthetic wears off and reality hits. That’s what friends do.
So many destinations …
14 Dec 2014 Leave a comment
What scares you?
08 Dec 2014 5 Comments
Not BOOGA-BOOGA pants-crapping scared, where your skin crinkles up and makes little screeching noises with sparklers on the ends. More like what are you AFRAID of … that fundamental sense of dread that a cog will drop into a random sprocket somewhere and life will change. Fear of loss is a keen motivator — what else drives us with that same force?
But what if life changed and you lived through it? And what if that happened over and over ’til you realized how brave you were and then you just started doing things and saying things you didn’t know you could do and say? What if people didn’t get any of that at all and you didn’t care? What if you just started kicking ass, including your own, and life really did change and you wouldn’t change it back if you had the chance? WHAT IF? Not the question I want to be asking myself when I’m gearing up for the choir eternal. What if I’d done all those things I knew I could do? What if I’d let myself be who I knew I was? And to quote Captain Obvious, what if I’d just been nicer? Regret, let’s not go there.
Holy balls, I’ve survived too long to let fear force me back into the box, and by now he’s like an old friend anyway, sort of. You know, keep your friends close, your enemies closer, and your powder dry.
“I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise.” ~Dawna Markova
A Fairytale for Throwback Thursday
04 Dec 2014 6 Comments
Once upon a time, there lived a handsome young man of steel who told a little white lie about his age, joined the Army at seventeen, fought at the front during The War to End All Wars on many fields of battle, came home intact in mind and body, swept a lovely fifteen-year-old store clerk off her feet, married her straightaway, and started a dynasty. Thus reads the CliffsNotes version, you may thank me after the test.
But before that, a lot of other things happened.
And while those things were happening, the young man was growing steely because clearly he had good genes plus a step-father who was certifiably unhinged. When the lad in our tale was less than twelve years old, his step-dad took him to the barren plains of eastern Colorado to “prove up a claim” and homestead it, worked him like a dog, left him there and went home to Kansas. But not before taking a pot-shot at him off the porch that put a hole through his hat and knocked him flat in the hard Colorado dirt.
The boy lived out there in that little shack by himself, with the heat and the wind and the wildlife, until somebody came for him. Whatever steel he wasn’t born with must have crawled into his bones in those months, and it never left him. I know this because he was my grandfather and I know he never lost his metal, his discipline, or his looks. He and my grandmother raised six sons and three daughters, all worth knowing in their own right. Grandpa knew how to do everything and Grandma knew the rest, so there was always food on the table and a good roof on a house full of voices laughing, crying, arguing, singing, talking, yelling, but mostly laughing. Smart funny people, this dynasty.
It’s my favorite fairytale to slip into on cold gray days because it’s all true. And a thing to love is that with everything Grandpa survived in his years, he never got smelly and mean-spirited and old on the inside. He and my grandmother both figured out how to stay alive and BE alive and how to pass that on. Pretty cool.
If I’m lyin’ I’m flyin’ …
03 Dec 2014 6 Comments
My grandma, who had to tolerate me a lot since I lived within rock-throwing distance and never knew when to go home, used to tell me that I was as happy as if I had good sense. That is, when she wasn’t accusing me of lacking the sense God gave a goose. Clearly she noticed a certain deficit in the reasoning department. Time and experience have predictably sharpened my perceptions, but if I have to base my mood on whatever life’s currently dishing out, I’m done. Hey, I KNOW things suck, generally speaking. I’m perfectly aware we’re all headed to hell in a disintegrating hand basket at warp speed. You know the drill: our atmosphere is imploding, our ground water’s drying up, our oceans are gunked up with plastic and sewage and a sick radioactive glow, the whole planet’s at war in one way or another, and disease and pestilence stalk the land. But I can’t shake the feeling that life is good, gosh darn it, all indications to the contrary. What can I say, things just have a way of working out, and it’s always too early to give up. To quote the great Lucimar Santos de Lima (it’s okay, even Wikipedia can’t find him), “It doesn’t hurt to be optimistic, you can always cry later.”
30 Things to Start Doing For Yourself
07 Nov 2014 Leave a comment
Mondays are for ranting …
03 Nov 2014 2 Comments
Poor Monday gets a bad rap, the short end of the stick, it’s the redheaded stepchild of the week, g’head, throw your own bad cliché into the pot. Monday is my official day to uncensor myself and vent, so you’re lucky I have very little to bitch about in any direction. By this point I have only a smattering of self-censorship left, so if I were to toss my last remaining constraints a whole lotta people who thought they knew me would be bailing out of this clown car. But riddle me this, don’t we all tend to be colossal stacks of filters from womb to tomb? And if you, personally, have managed to shed a few layers along the way, does that not feel amazing?
Why does it take so agonizingly long for some of us to realize that we can’t love ourselves if we’re busy keeping everybody else happy? Why so long to know that our opinions, thought processes, and convictions are as legitimate as anybody else’s, and far saner than many most? Why are we so … human? As you no doubt picked up on, BECAUSE YOU ROCK, those are rhetorical questions and you are in no way obligated to send me the answers.
So on this chilly November Sunday (yes indeed, overachievers do today’s homework yesterday) while I track a friend who’s running the NYC Marathon, I’m thinking about relationships. As a Social Introvert on the chart, my relationships center, in time spent, around people on Facebook and WordPress and the two forums overlap greatly. My core group of out-there-in-the-greater-world friends are almost all part of the Facebook zoo as well … so as Zucky might want us to say, “It gets complicated.”
I write about Facebook once in a while because it’s such a funny animal. Age and lifestyle differences notwithstanding, my experience with it seems to be basically the same as everyone else’s — we’re all looking for community, a spot to fit in, people to talk to and listen to, a place to say things so we can figure out what we really think, share funny stuff, and brag about pets, kids, grandkids, fairytale weddings, and vacations. However, there are some obvious differences attached to the experience: If you’re in it to troll, ridicule, hate on people, do harm to animals, men, women, children, or anything else that lives and breathes, including Mother Earth, or expose your (clearly amazing) body to the universe … then you and I occupy different worlds, thank god (except I’d take the body).
As with everything else, my personal Facebook and WordPress guidelines are simple:
1.) Since it’s my life/page/blog, I say/post/read/write/share whatever speaks to my spirit.
2.) I will never knowingly or purposely say/post/write/or share anything that would wound or humiliate someone.
3.) If you disagree with or are offended by anything I say/post/write/or share, then I encourage you to take full ownership of your newsfeed or reader and opt to keep scrolling on down the Facebook/WordPress Road. My brain flies in all directions at once and my tastes are ludicrously eclectic, so I’ll eventually get around to either pleasing or offending you and all the rest of my friends, possibly in a single post. Or you could talk with me and I promise to talk with you back, not AT you.
4.) If you’re family, going out as far as that extends … in-laws, outlaws, exes, cousins repeatedly removed … I will likely never unfriend you. However, if you’re rude I probably won’t choose to get into a discussion with you again either. Most of you in my gene pool are of the opposite political persuasion so I’m fully aware I can be a trial, but you’ve been pretty patient so far and it’s a matter of honor with me to be fair, to vet what I post, and to stay true to where I am on any given issue. You also know by now that I consider politics to be some of the most important stuff we can think and talk about since that’s what determines the kind of world we live in, so if you have to hide me, so be it, there are lots of other people here who share my passion.
5.) If you send me a friends request but never once say hey or talk to me or acknowledge that I’ve dropped in on you, my bullshit detector goes off and I start thinking about sending you to the cornfield.* So let me make this easy for you:
a.) Yes, I’m still married to that guy you probably didn’t trust, we celebrated ten years this past summer, and we’re still disgustingly stupid over each other.
b.) Yes, I’ve gained a few pounds, let my hair go silver, moved to a liberal outpost, and started living. And that’s okay.
c.) No, I don’t know why you’re here either, so we’ll probably be saying goodbye soon. I ain’t mad, bro, it just isn’t gonna work out between you and me. Really, it’s not me, it’s you, no hard feelings.
*Fellow introverts are exempt, of course. I know where you’re not coming from, and why.
To all who’ve been part of an adventure I’ve ended up living publicly on Facebook and WordPress, all the friends who were already in, have bought in, and/or hung in … thank you. You’re a big part of where life’s going — I have tremendous role models among you and find myself incorporating bits and pieces of your personalities, writing styles, mindsets, fashion revelations, food loves, humor, and more. I’m pretty sure Kim and I didn’t win Saturday night’s lottery, again … but how much could it matter in light of wealth like the above? Tomorrow the mid-terms will finally be over and we’ll know where we’re headed. And hey look! I still have genuine friends at this point, what a gift.
This is life, not a dress rehearsal …
29 Oct 2014 Leave a comment
After comments from Facebook friends like “I’m so jealous,” and “I want to MOVE,” I’m thinking I should add a disclaimer to yesterday’s post:
Lawrence is obviously not heaven on earth. All of life is what we make it, and we came here with a goal of making it amazing, to make of this part of our lives all the good we possibly can, and to overlook the negative. That colors our approach to what we see every day when we wake up, what we do, where we go. Someone else could come here and have an entirely different experience and wonder why they feel let down in view of all the “hype.”
1.) Life is what you make it, and 2.) no matter where you go, there you are — two clichés that are truth just because they are. Kim and I are making up for lost time — we met late in life, we’ve both lived places we weren’t wild about, we’ve both felt stuck in routine and longing for more “soul” food. We don’t have the luxury of waiting and hoping at this point, so we get up every day and make fun things happen, whether we step outside our own walls or not. Some may see my ramblings as bragging, but they’re my way of being thankful. I don’t want to wake up later and wish I’d appreciated life more when I had the chance.
Young people think they’ll always be that way — young. And some people just need to be told it’s okay to be happy — to give themselves permission to live, from the inside out. Just do it — regret is a killer.
HAPPY FALL!
My Brother’s Keeper
24 Oct 2014 8 Comments
“Mom, can we have a baby brother?”
What second-grader with two younger sisters seventeen months apart hasn’t asked that question? My dad, born a farmer, always a farmer, seeing nothing but estrogen in his future, might have thought about asking, too.
My mother was probably all for it, as long as she didn’t have to make it happen.
It happened. A brother was on the way! But things went cataclysmically wrong during his birth and he was delivered stillborn at full term. His name was Dennis Lee, and his funeral service in my grandparents’ farmhouse living room, his tiny white casket placed on a lamp table, was the first time I ever saw my dad cry. My mom was still in the hospital recovering from emergency C-section, so she couldn’t even be there. The room was a blur of tear-streaked faces, and my little sisters were in that circle somewhere, being held by neighbors. My grandparents’ grief-twisted faces seemed foreign to me. The only familiar face I could really see was my dad’s, and he was shaking with sobs. It was somehow a greater loss of innocence than the realization that the flawless little doll in white satin was my brother and he was dead.
The next year, when I was eight years old, Susan about four, and Rita somewhere south of three, it happened for real. A boy named Danny Lee arrived full term and in a hurry, bypassed a mandatory repeat C-section, came home from the hospital and instantly belonged to three older women — me, Susan, and Mother – but mostly me because Susan was little and Mother needed rest. Rita was not in a helpful mood, end of story. After our dad got our mom and the bundle settled in the living room, Susan and I jostled each other for a first peek into the bassinet. Wow, another perfect little face. Rita was across the room in the kitchen doorway with a comforting finger in her mouth, so Mother asked if she’d like to come see her new baby brother.
Finger pop. “I can see him just fine thrum here.”
Pretty much took that as a no.
So for a while, Danny Lee was my baby, sort of. I got to warm bottles, feed him, rock him to sleep, don’ know nut’n ’bout no diapers, though. Made him laugh, teased him, made him cry. And then the next day he was out of grade school and I was getting married. Meanwhile, my lucky sisters got to grow up with him. Big-sister angst is a thing, people! I knew the baby, the toddler, the sometimes-annoying grade-schooler, and the beginnings of the awkward adolescent Danny Lee. My sisters lived with all that, and then got to spend far more quality time than I did with Danny the adult.
Danny Lee was a quiet boy. Danny the man was that way too, with subtly-increasing layers of gruff for protection. Today’s social scientists might label him a conflicted introvert. Tenderhearted, easily wounded, cursed with three idiot older sisters. Talented, gorgeous, funny. Not us, him. Clever and hysterical almost from the start. Cornball humor was his forte, but puns, riddles, and goofy magic were also part of his medicine bag. AND standing directly around the corner from whichever sister was on the stylish black wall phone with the two-inch cord … farting … and walking away.
Susan had her own unique relationship with Danny, in fact they ended up practically related to each other. Oh wait. No, no worries, this isn’t one of those “farm boy and cousin” stories, I hate that crap. Okay, put down the cheese log and give me your undivided because I’m only going to say this once. My brother married a girl whose brother was married to my sister. Not Rita, the other sister. So you can pretty much deduce which sister was a sister-in-law to her own brother.
Rita wins the Sisterhood of the Traveling Overalls, though, because she worked side by side with Danny on the family farm. They got to sweat, laugh, get muddy, cover for each other’s mistakes, hatch ideas and be farm-kids-who-aren’t-really-kids-anymore hilarious. That’s blue-ribbon stuff right there, I don’t care where your state fair is.
Danny had funny lingo for things — a ball-peen hammer was a ping-bong. He also had a little bug called bipolarism, which runs in our family like … well, what it really does is stroll through at a leisurely pace. Why run, everybody’s gonna be here anyway, unless, of course, maybe they aren’t. In this gene pool if you aren’t clinically depressed, manic, or on the way up or down, you won the lottery.
Danny didn’t draw the winning numbers. In hindsight, a phrase that rarely precedes good news, we can see that he was already living with depression as a little boy. Adolescence extracted its toll, and the illness reached full force in adulthood. Anyone who’s struggled with bipolarism or clinical depression, personally or with loved ones, knows that it’s cyclical — it comes and goes. So a percentage of the time Danny enjoyed life the way we all want to, conceivably feeling what we refer to as normal.
He went into full-time farming with our dad, met the love of his life, married her, and they made three beautiful babies. He became a bodybuilder on his own time, with his own weights, and turned himself into even more of a work of art than he already was. The discipline he applied to that goal was nothing short of astounding. But the illness would not leave him any lasting peace, and he finally had all he could stand of the pain. Depression is a vicious liar that convinces you you’re in the way, you’re hurting other people’s lives by your presence, and everyone would be happier and better off without you. The brother we’d waited and prayed and hoped for ended his life on a chilly October morning with a shotgun shell to the heart, splintering the beautiful body he’d spent so many hours and weeks and months sculpting and toning. He slipped away from us in the basement of the same house where our first brother’s funeral was held.
There was a brother hoped for and lost — an impossibly small casket. A brother hoped for and found — a tiny bassinet. And then lost far too soon — a ponderous casket that made finality real.
His sweet little family was shattered. It almost killed our parents. There wasn’t anyone who knew him who wasn’t laid low, our legs cut out from under us. For me it was like having all my skin ripped off in one piece and still being required to stand on my feet raw and bleeding, because life doesn’t care, it keeps right on happening. Do I know that Susan and Rita felt the same way? Yes. Yes, I do. We’ve each dealt according to our own individual mechanisms, and come to terms with some of it. But there’s nothing like a suicide for providing your therapist significant other with job security.
I won’t even go into the whole conversation about the whys and hows of depression and suicide. I wrote about it here https://playingfortimeblog.com/2014/08/24/challenges/ and I recommend that piece as a companion to this one if you’re looking for some feisty light on the subject.
This isn’t about explaining. It’s about the truth that three adoring sisters, a broken mom and dad, a loving wife and three little kids lost someone none of us could live without. Not and in any way be the same people we were, ever again.
This is longer than most things I write here, but it’s mostly for my sisters, and for me. And for Danny’s kids, Ryan, Jeff, and Kelsie, who were six, five, and eighteen months old when he died. He was 29 and it’s been 29 years this month. It isn’t possible that he would be 58 years old now, because he’ll always be the young Adonis I saw for the last time at a family picnic and didn’t know it was goodbye.
Danny’s funeral service has been an ongoing source of pain to his three sisters. The minister meant well, but he called Danny by our dad’s name throughout his sermon, making it all feel coldly impersonal and needlessly wounding. And his fundamentalist convictions wouldn’t allow him to say the word suicide or acknowledge that Christians with huge loving hearts are as vulnerable to depression and death as the rest of us, so it was a lot of empty words going nowhere.
On this anniversary of his death it feels imperative to try to put something of who our brother was into words, and now I find that I don’t have enough of them. He was a hero to his children and his sisters, the long-awaited son of his father, the joy of his mother’s life, the husband of his wife’s youth. He should have survived so many of us, and there will always be a vast hole where he’s supposed to be. Someone as goodhearted as he was needed to be here forever — those people are in critically short supply.
We love you, Danny, we always will. You were perfect, just the way you were. If any one of us could have known how much your heart was breaking, we would have rocked you in our arms and done whatever it took to keep you here. We know you know that … but we’ll always cry when fall comes and the leaves turn and everything reminds us of inexpressible loss.
A blast from the recent past …
17 Oct 2014 Leave a comment
Today’s blog piece is still in the barrel doing a bit of necessary aging. Here’s one from September of last year that spoke to me again this morning. Click the link for my San Francisco story …
https://playingfortimeblog.com/2013/09/12/what-i-did-this-summer/
Rose Among Thorns
09 Oct 2014 10 Comments
The week wouldn’t be complete without a touch of Throwback Thursday. Innocent little me with some delinquent cousins. Upon closer examination, I strongly resemble Bride of Chucky.


































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