Anger vs Gratitude…

Woke up yesterday morning processing anger, straight out of a dream… Kim said the growls and grumbling at 6am, which he first mistook for snoring, were truly impressive. I repeatedly ran everything through the wood chipper all day but the fury remains untamed as of wake-up time this morning.

Also, write this down: I DO NOT SNORE. However, my dreams are a wonder to behold for scope and realism. Yikes.

The catalyst for the renewed angst seems to have been a combo of things… fresh statistics illustrating our dismal outlook in the face of COVID and its progeny… the fact that we find ourselves in this position due to humans’ inability to care about other humans… and a heartbreaking article about the burden we’ve placed on the medical world and the toll that’s taking.

The pandemic is as much an industrial-strength shock to the medical community as to the rest of us out here who of course know it all. Those medical people spent long years full of sleepless nights on little food, learning how to save lives, maybe even yours or mine someday. That’s their drive, to make people better and thus the world a teensy bit softer for the landings. And they’re good at it, really good, and they know things, and have seen and done things which you and I do not want to know, see, or do… nor will we, because we don’t have what it takes.

Medical personnel do the jobs they’ve been trained and educated to do on an equal-opportunity basis… pigment, religion, politics, and rude combative patients notwithstanding, they do their jobs. And then one day a snazzy new virus knocks on the door like the skeavy Orkin termite, and the game changes overnight. The breakout quickly becomes the pandemic the world has now been living in for two years, with all medical personnel, equipment, and hospital units required for the flood of sick and dying. It’s no longer about “making things better,” there’s no time. You keep the patient on your right alive, if possible, while losing the one on your left. The hours blur while you pull double shifts on your feet, clothed in trash bags and week-old masks because the supply closets are bare, praying you don’t catch whatever this thing is and end up dropping in your tracks. And then you watch that very thing happen to a colleague… and then another. And in a heartbeat, working in the medical field has become more about death than life.

Months have passed, you’re still pulling all your shifts and more, and now the monster has a name… Coronavirus. Or COVID-19. Or just COVID. There are even approved vaccines available… but not for you… because medical people, some of the first and longest-exposed, are not at the top of anybody’s priority list, which should have been an early indicator of where it would all end up. We only hurt the ones we love… or need like air and water.

Now you’re lonnnng months into the process, which feels less like a battle and more like an endurance race. You’ve gone from hero… “Doctor, please, help me!” “Nurse, I need you, please!” … to zero. “No, I DO NOT HAVE COVID, YOU’RE LYING!!” “It’s a HOAX! I can’t die!!” Nurses and doctors have been assaulted, insulted, spit on, screamed at, and blamed for letting people die of a scary disease those same people refused to vaccinate for. In the hopeless melee, the lofty goal of making things better dies a quiet death, and people we desperately need for our own selfish purposes are simply not there anymore. Their own institutions, in many cases, haven’t backed them up, haven’t provided the safety measures needed, haven’t compensated them for their heroic over & above sacrifices. The public, in too many places, has turned on them in ways we could never have imagined. These nurses and doctors see their lives trickling out, day by day, for a goal that no longer feels reachable… and for a populace that wouldn’t know the difference if the landings were made softer… and they’re finding other, less soul-killing things to do.

In parts of our nation where COVID and its variants are rampant, the bright shiny people who wanted to make a difference are walking away. Why risk death for people who don’t in the least mind if you drop in your tracks because they refused the antidote? Or because your employer doesn’t want to pay extra staff. Or “extra staff” is now a figment of the imagination. We won’t comprehend what we’ve lost until they’ve all taken their gifts elsewhere.

The pandemic is nowhere close to being over. Two thousand people a day are still dying in the “greatest nation on earth.” It hasn’t magically disappeared, it hasn’t been prayed away, it’s with us for the duration, however long Mother Earth lets us stay in the nest. As so often happens now, the minority chose for all of us, and life here will never be the same. I’m exorcising my rage today by paying homage to every person in the medical community who has tried, against insurmountable odds, to change the outcome, to save all lives possible, to make a difference. Thank you for BEING THERE and for using who you are to slow our slide to hell. Really, truly… thank you forever.

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What a beautiful morning…

It was wonderful waking up in my own sheets this morning after spending the previous three nights in a hospital bed. They have their charms, and cool bells and whistles, but they don’t feel like home. The whole thing was an interesting diversion, starting with 8 hours in the ER on Wednesday, causing me to miss a haircut appointment, which in Girl World is something to write home about. Then upstairs to the Cardiac unit, of all places, for much additional needle-poking, a rat’s nest of lines and cables, and round-the-clock observation. Was allowed up only for a bedside commode, oh joy of existence, so by yesterday morning I was feeling wretched, especially with my scalp full of glue from a brain scan. My everlasting thanks to Mona, who rescued me from the lowdown blues with a lovely chair bath, a shampoo cap, clean sheets and gown, and a brisk walk in the hallway in my cute yellow floppy-socks. She’s going into my binder full of heroes. No conclusive answers yet from various batteries of tests, but after a high of 210/203 in the hospital, my BP first thing this morning at home was 113/67, so maybe we’re getting somewhere.

We decided to retire in Lawrence for two primary reasons. 1) The vibe of the arts community and the university, and 2) the stellar medical community from here to Kansas City. The excellent LMH complex is closely associated with KU Med, so we always have access to the brightest and best, including the latest technology, very reassuring when things go wonky. In the many times we’ve needed medical personnel here, we have yet to encounter a negative experience, which speaks volumes. The help we received and the people we met this week have only confirmed to us that this is home, and it’s a health perk to feel like you belong somewhere. It’s been gratifying during this pandemic to live in a place where people have instinctively grasped the need for health protocols and followed them. It makes all the difference.

As usual, I have receipts:

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My first test in the ER Wednesday was a CT scan for stroke. The second was a rapid COVID test, showing the priority the virus still holds here in town, especially with Delta assaulting us now. The third was a chest CT to look for pneumonia, yet another marker they’re on high alert for. We could help each other so much, all across the nation, just by keeping that bit of 2-way protection across our mouth and nose when we’re around each other. Kids have no problem with it, it’s an “adult” issue nobody can solve, so on we go, slogging through the viral load around us.

It’s a strange world, which shouldn’t surprise anyone. Just for starters, we’re stuck via gravity to a ball of assorted schmeh, spinning through the universe among other large balls of schmeh. Highly unusual existence, except that we don’t know any other, firsthand. Quite probably it’s our very tethered-ness here that makes us bicker amongst ourselves about things like who’s right or wrong and why it matters. We have no Planet B, so there’s no place to take a powder ’til we feel better about life on this one, we’re “in community” whether we wish it that way or not, so it seems a shame we have such a hard time communicating within the human commune. Not all of life is threatening, nor scary beyond reason, and most things we find the grit to talk about lose at least half their power over us. But the talking, the saying of things, turns out to be the terrifying thing we can’t do, so after all’s not said and done our relationships become part of the health schematic we can’t fix.

Therefore… we fix what we can! And we’re fixing to have another healing spa soak on this partly-rainy Sunday morning, and count blessings.

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Got ‘er done… page 183

Day 295 – 01/04/2021

Welp, I’ve been ‘rona tested – took a little over an hour this morning and was no biggie – clearly it matters who sticks a big Q-tip up your nose and how, because I barely felt it. Kim was tested before a recent procedure and he didn’t feel it either. And now we wait… and keep doing exactly what we’ve been doing for ten months.

Felt a little odd to be able to drive up and take my turn for something most healthcare people in the country have never received and that’s a coronavirus test. Hospitals don’t have a comfortable supply of tests, so their nurses go without, and most have yet to receive their first vaccination. Don’t let anybody kid you, Donald Trump has broken the United States, just as he set out to do, and right & wrong have been crushed to bits.

Kim picked up Rita’s grocery order this morning and left it on her porch, so he’s out there on behalf of the sisters, thank goodness. Remains to be seen what this is, but I feel like crap. However, since that’s nothing new for this fibro-wracked body, it could be anything. Or nothing. Might try to sleep for a while…

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Life goes right on happening…

Constant or even Casual Reader probably knows that when I say *interesting week,* stuff happened. This past weekend has been interesting.

On Friday, Kim had his first Mid-Life Crisis Sports Injury, and since 9:30 that morning, routine, that deadly imposter, has gone out the window. Two neatniks have reverted to hippie habits, of necessity, and are getting used to relaxed standards. My singleton side of our King bed is easy enough, just pull up sheet and quilt as I bail out, but there’s a 3′-high pile of clean laundry on the chaise next to the bed, and various admission and dismissal detritus from the hospital strewn across the dresser. Kim’s living and sleeping in his recliner for now, so the table next to him is a conglomeration of what he needs throughout the day and night – but he has a system and don’t screw with it. His kitchen needs his Navy Squid attention, especially since we’d been planning a fall scrub-down, but oh well, I’ll knock some of the big chunks off in a day or two. When somebody you love is in pain, that’s where all your energy automatically gets funneled, as it should.

All day Friday, from 10am to 5pm, was spent going from ER to Ortho and back, X-ray to CT Scan, lightweight “sugar tong” cast, to temporary traction, to plaster “sugar tong.” Food, finally, at 6pm, and home. Saturday and Sunday are a blur of opioids and other meds, a grocery run to maintain a cushion for the drugs, some amazing sleep, and a sense of marking time.

Yesterday, Monday, we checked him in for surgery at 10:30am. He went to the back for pre-op at 11. Was told they were taking him to surgery at 12. Froze my fanny off in the waiting room, listening to my tummy growl, until 1:30pm when a nurse came out to tell me they were backed up in the surgical suites and had just then taken him in. I nearly cried, and would have had she not said “He’s been napping this whole time.” I just said very quietly, “I’m freezing,” whereupon the receptionist said “Oh honey, you have to say something!” I told her “I didn’t know I could!” She turned up the thermostat, the nurse brought me two blankets out of the warmer, and I settled in for the long haul. I’m terribly out of practice since my days of caregiving for six older family members – I didn’t think to take my iPad or any protein snacks, or even BAD snacks. My head had room only for Kim, getting this repaired, and taking him home.

When all was said and done and I’d gotten the Ortho surgeon’s report (he looks all of 19, of course), it was 6pm, eight hours since we’d left home. But the report was good and that’s all that matters. It was a bad break and Kimmers now has a plate in his body that wasn’t there before, but the bones went together well and Dr. Huston was able to deal with the bone gravel and other crunching in there that wouldn’t have been good longterm. All’s well that ends well, which is down the road a bit. He’s in a heavy-duty cast until time for the stitches to come out, then a less mondo one, and finally he’ll get a fiberglass number that will start increasing his independence noticeably.

For now, it’s a little like Momming again and I’m glad for grown-up cartoons like YouTube and television. The drugs make the patient a little sleepy, so movies are good. Also car porn, like Mecum Auction and Barrett Jackson. And the car rebuild shows – there are some of those we both like a lot. The Big Guy has seen me through at least four major medical events in the 14 years we’ve been married – I’ll do anything to keep him comfortable through this one. It’s how we roll.

 

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A Time for Truthiness

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I do seem to be gone. But not for good. Don’t you go away forever either, friends, I would miss you terribly. Fall will happen, it always does, and we will be right again, and be human together. Be safe ’til then…

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Catharsis is not pretty…

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Dammit, life in the end is a cruel mysterious bitch because it’s so beautiful and so brief. I stand in the shower and cry wracking sobs that leave my ribs sore because we’re getting into our 70’s now and some of my most brilliant friends are falling to Alzheimer’s and I can’t make it stop and IT’S NOT FAIR. And I’m wrapped in a towel with my hair dripping water and running down with the tears and I’m trying to find words that mean anything at all when the world is ending and I’m mad as hell and nothing’s right anywhere except… a precious beautiful man loves my son and maybe I can stop crying in a little while… maybe… because when life seems like it has to end right this minute so we won’t die from the ache… there’s something so good we’d be really… pissed if we missed it.

And then we’re crying… softly now… from the grace and the sweetness and the peace and the yin and the yang.

The balance is always there if we can let the quiet find us…

… so pain is such a mixed bag that we don’t really dare wish it to be gone forever. That’s a much-needed revelation this morning and I’m glad for it.

Have a beautiful spring Sunday, friends. Because life is good. So good.

 

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Um…what was I saying?

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Good morning, friends. I woke up to sunshine and a stack of birthday greetings, so I’m currently fortifying my brain and bones with coffee and preparing to meet myself at age 70 before the day’s over. It feels odd to own that milestone, but my primary emotion is thankfulness – I’ve outlived my mother by three years now, and I like not dying yet, so here we go…

Kim’s playing PickleBall for a couple of hours in NoLaw, and when he’s home and showered we’ll walk through the alley to The Roost so I can have potato pancakes like my mom made. This evening will be dinner at Basil Leaf, with serious fasting between the two birthday meals. Some industrial-strength healing is in order as well – over the weekend Kim narrowly missed getting slammed by a bronchial event, and yesterday I picked up where he left off. It’s been years, I have no idea how many, since I’ve had a cold or flu, but this thing is trying to kick my butt. Razor-blade throat, cough that won’t quit, head full of gack. My stubborn intention is to feed it, drown it in good coffee, sleep it off this afternoon, and otherwise ignore it to every extent possible.

I have projects to finish and about a million books to read, so Job One is to stick around and do life right. There are people to meet, family to embrace, music to cry over, beauty to fully appreciate, and love to hand out like candy, so I hope I get to stay here with all y’all a good long while.

Experience is worth everything and I happily own the lessons it’s taught me – I’m genuinely liking this part of life from 65 to whatevs. Things have kind of smushed together by now and squeezed out the excess baggage, so I mostly deal with only what really matters, and that works super nice.

Hey, I’m feeling better already. An excellent week to all, and come talk to me. 💋

 

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but listen…

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Break-time…

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weekends feel dif’rent

even for retired kiddos

neutral is the gear

JSmith 07/29/2017

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I don’t hate them anymore…

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time for a nap now

new thing from an old life gone

makes the day go right

JSmith 05/19/2017

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How bad is your OCD?

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Over the years together Kimmers and I have gradually realized that we’re both assorted shades of OCD. His shows up, fortunately, as a desire for neat and clean so we’ve saved serious coin by declining to engage the services of a Professional Domestic Engineer since his Mom-&-U.S.Navy Training rendered him eminently qualified. He also prefers being alone in his kitchen while he works his magic according to nose and feel. It isn’t nice to interfere with the Zen, not to mention that it would be foolish, so staying out of the way and maintaining partial radio silence is no sacrifice on my part. I read yesterday that “he who feeds us is our personal god.” I’ll buy that, especially since Kim’s an entirely benevolent one and those are hard to find.

My OCDness is sort of what it looks like – oddness. Odd Cranial Disarray. That’s me up there with too many things taking up space in my brain, sorting priorities, trying to stockpile enough spoons for whatever’s ahead. When it all gets to be a little much I start asking myself what needs to go, either for a while or for good. This month it was my long-term addiction to Facebook, something that felt unbreakable until now. In a bold effort to rescue myself from the slough of despond over politics, which is to say daily life, I shut the door cold turkey on February 1 and the only thing I miss is comments from my real friends there. If I go back when March blows in it will be with a far less engaged mindset. No rush.

The most obvious clue that I’m at least a little OCD is that whatever toy grabs my interest and attention gets the “You’re my favorite thing in the world” treatment until the shiny wears off. Disclaimer: The preceding statement does not apply to people I love – distractions only.

First obsession I remember was learning embroidery from my grandma, making quilts with her, making my own clothes, and then in my little old lady days falling victim to the counted cross-stitch fever that took the civilized world by storm. It was fun, expensive, and I got good at it, but alas, in the end too much work for the eyes and neck muscles, so bye-bye trunkload of fabric, floss, and patterns, hope your next mistress isn’t so fickle.

Having grown too young at that point for needlework I got my first computer and the world was new again. It turned all that industrial-strength bookkeeping on the farm into a sweet walk in the pasture, and it was chock full of games, including an elaborate DOS setup that taxed all my brain cells even as it entertained. Then…years later, when I was even younger, social media burst onto the scene in all its primal glory and began its scorched-earth march to the sea, incinerating all in its path. And hasn’t it been a barrel of laughs, boys and girls? Still is, some days, and I’ll wander back soon, to touch base if nothing else.

I have fond memories of the adorbs farming app in the early days – I lived that silly game, fretted when my crops failed because I was, incredibly, away from the computer when they ripened, took pride in arranging everything just so. One day it dawned on me that I was exerting a godlike control unavailable to me as an actual farm wife and I quietly left it to the birds and bunnies. Then came Candy Crush, the game that ate my soul.

In my current iteration as an adolescent I’m bouncing from one fill-the-blocks app to another, working an endless selection of online jigsaw puzzles and crosswords, dabbling with Twitter, and still ending up with plenty of focused hours to write. Shocking how time-devouring Facebook alone is if you think you have to see every.single.thing that passes through your feed.

I started out to say something here but it got lost in the spaghetti, so let’s do this – if you have reason to think that you, too, may be eligible for the OCD Club, raise your hand, introduce yourself, and let’s have a meeting.

 

 

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“You’re faking it…”*

 

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Thursday was amazing – from morning ’til night I stayed busy with stuff people all over the civilized world do every day and never think twice about. Rolled out of bed at 8:00, had some coffee, got dressed, slapped a cap on my wild head, and strolled over to the barbershop, a distance of half a block plus an alley. After all that dedication on my part, my girl Shelby wasn’t in yet, so I turned myself right around and trekked back home.

Took a shower and spent the morning writing at my computer. After Kim got home from PickleBall we had lunch at Five Guys, went to Target where only he went in, stopped at the dry cleaners, Kim again, and he dropped me off for my haircut, after which I walked the block and an alley home again. Played on my computer a while, did a load of laundry, policed some clutter. Around 3:00 we went south again to Cielito Lindo, which sits that one alley I mentioned short of the barbershop, for Margaritas, chips & salsa, and forbidden queso. We were home and entertaining each other on our own balcony by 5:00, and asleep early, as in by 9:30pm.

That was a big ol’ mess of trivia and why in the everloving did I bother sharing it, you ask? Only because, since no good deed (or day) goes unpunished I woke up at 3am in full-on fibro meltdown. To expound on the symptoms would turn this into a whine, just know that I paid big for the best day I’ve had in quite a while, and that this is the sort of price extracted from anyone out there with an autoimmune disfunction who’s bold enough to enjoy what’s in front of them once in a while. You can say I overdid it, but if you read back through and pick out the action words you can see that it was well-paced and carefully done and didn’t amount to all that much. At no time did pain tell me to sit down and shut up, so I rambled around in the sunshine behaving like a real person just for shits & giggles. The 3am message was “Hey, girl,” sounding nothing at all like Ryan Gosling, “you thought that regular stuff was for you. Haha, so sorry.”

The good news, because who can’t always use some, is that Friday was the only lost day this time, down from an average three. Tells me we’re on the right track with Ken & The Lymph Nodes, and that makes me happy.

The reason I’m taking the time to blog about this is that the thinly-veiled scorn that ends up out there on the backs of people who can scarcely spare the energy to deal with it is grating and I hurt on their behalf. Whatever people might say about me is none of my business, but ignorant digs at friends and family don’t go unnoticed, so I choose to fly my educator flag occasionally.

It’s all so simple – if you haven’t experienced or been diagnosed with an illness that for some reason annoys you in others then you don’t have a platform, so this is not your circus, it’s okay to wander off and take care a’ bidness, maybe contribute to the greater good through kindness or tolerance, something like that. Fibromyalgia is an invisible disease that affects 100% of the body, so you can feel really good about cutting people slack, in fact that’s your mission today should you choose to accept it.

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*Don’t read past this point unless you’re in the mood for naked truth…

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#saturdaymorning #notwhining #Fibromyalgia

 

 

 

 

 

 

 

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Keep peace in your soul …

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self-care is hard-learned

after all options used up

rest has to happen

JSmith 02/15/2016

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Just get through it…

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days informed by pain

must be survived in one piece

life takes a back seat

JSmith 02/11/2016

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Namasté…

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clear out the cobwebs

brain engages as it will

worth the good effort

JSmith 02/09/2016

#ShePersisted

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