A fractured fairytale…

*

Once upon a time, long long ago, on a farm far away, there lived a little girl. The girl’s early childhood held much of what today’s world calls “going through some things,” silently shaping her psyche and setting her future in motion.

From the outside, we observe that the “wild and free, who cares??” mindset of farm children earned the girl her share of dings and cuts, but it’s in hindsight that we see her defining moment… a water-skiing accident at age seventeen that rearranged the molecules in her body in ways that would make themselves known over the ensuing years. Hotdogging for friends, she skied too far onto the sand and when her skis stopped she flipped out of them, impacting earth with the side of her neck and right shoulder, and flipping again onto her back on the beach. We know it couldn’t have been pretty, but any landing you walk away from is a good one.

The girl blithely greeted life as if she weren’t a ticking time bomb, and her naturally sunny nature saw her through much. She married a good man with PTSD, just home from Viet Nam, and they had a blond, blue-eyed little boy and continued the farming life, with everybody pulling together to make it work. When the girl was 29 years old one of the concealed bombs from the accident exploded in the form of a ruptured aneurysm under her skull, and following cranial surgery she found herself walking away from another one. Thin, bald, but under her own strength, she started to entertain questions about what else fate might bring?

One weighty answer came years later when the farmer perished in a harvest accident. The girl then left the farm and her world spooled out in entirely new directions. Life had been totally rearranged, and after a year and a month alone she met and married a California surfer-dude, natural caregiver, friend for life, and best boyfriend ever… that’s what she said.

Meanwhile, areas of damage continued to make themselves known. A once-nagging back pain was now a constant source of torment, and a couple of small back surgeries aimed at relieving pain changed nothing. Her right shoulder became unbearable, so more than thirty bone spurs were removed and a few tears mended. Countless lumbar injections and epidurals have had negligible effect.

The little blonde farm girl turns out to have a fatal flaw… she’s something of a klutz. This only became more pronounced after the accident, which put her gyro out of whack, so throughout her lifetime she’s had many interesting falls… one a memorable escapade on ice that shattered her other shoulder, cracked two ribs, and smashed her face into a large potted plant. Now both shoulders get regular steroid injections to deal with Arthur, who makes himself at home everywhere, uninvited.

The little girl from long ago is old or on her way, and now another bill has come due. Our story tells us that the scar tissue from the cranial bleeds and surgery has a life of its own and is generating something called focal seizures… oh joy for the girl. She realizes by the symptoms that these seizures have been building in intensity for five years or longer… and that the accompanying aura is the same as when the aneurysm first ruptured out there in the stillness of the prairie. She says it feels like waiting calmly in the presence of death… and there is no fear in the room. The good news is “there’s an app for that,” and better living through chemistry is panning out so far.

Moving our tale along, the girl who is now an Old got to see her own spine last week in stark relief, which answered all but a couple of questions because there’s nothing like black and white for instilling reality… and now the Girl and the Dude have a few things to talk about.

So, boys and girls… life is long, day by day, but a brief candle when viewed from the other end of the telescope. Early on, we think everything will get right when we’re finally adults, which is one of the saddest, funniest misconceptions of childhood ever. Only gradually and often at a late date do we start to grasp that life is about the moments and each one is steadily making us who we are. Sometimes the way we handle life makes us prickly and insufferable… sometimes life comes at us so hard and fast we struggle to sort things out in time to deal with them the right way. And sometimes we’re just jerks. At least that’s what the little farm girl said…

THE END

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Challenges …

So have you done the ALS Ice Bucket challenge?  The videos I’ve watched are entertaining and attention-grabbing, which of course was the aim, and suddenly a little-talked-about disease is receiving the big focus and funding necessary for ramping up the research.  A diagnosis of ALS is a death sentence, regardless of age or station in life, so a cure would be a godsend. The conversation is in full bloom around the country, as intended.  We can’t really address things we have never faced, don’t know about, or are afraid to discuss.

Concurrent with the ALS wave, the death of a much-loved entertainer has sparked a dialogue on the realities of clinical depression and suicide, with far different results.  The ugly, willfully ignorant comments on social media have been crushing.  If a friend confided in you that he or she had received a diagnosis of Stage 4 cancer and had only a short time to live, would your response be something like “Wow, dude, that sucks.  But hey, quit whining.  Chin up!  Everybody has troubles.  Keep a good attitude, get out and enjoy life, it’s bound to turn things around.  You’ll feel better before you know it!”  If you say yes, I call bullshit.

I’ve seen a few negative comments about the ALS challenge — it wastes water (give me a break — your twenty-minute showers and ice chests full of beer are all totally justified, I suppose); it’s stupid and juvenile (but painting your face and body for a sports event, or wearing a block of cheese on your head isn’t); I don’t see the point (of course you don’t, it’s under your hat). But the response has been predominantly positive and lighthearted, and it’s fun to watch.

The conversation about depression and suicide is an entirely different story.  It’s a fact of life that our bodies get sick and die — it happens right in front of us so there’s no denying it.  But you could talk and type all you want and way too many people will still never comprehend that our brains and psyches get sick, too.  If you wouldn’t shame someone for having cancer or suffering a brain hemorrhage or getting hit by a drunk driver, why would you use shame as a tool against illnesses and injuries of the spirit?  And who the hell are YOU to do that in the first place?

Here’s an actual example of the complete nonsense being posted:

“The fact still remains he (Robin Williams) killed himself because he made bad choices in his life … society is only making a big deal out of him because of who he was and his money.  Wealth comes with challenges.  Depression is one of them.  … A person’s stature in society shouldn’t make them any more important than anyone else. … Seek out help.  It is out there but you have to lose your pride to find that help.  Don’t be a coward and take the easy way out.  Listen to the voice inside you that tells you right from wrong.  Don’t try to tune it out or you will be in for a rough time.”

What a steaming pile of panther whangy.*  If you don’t know what you’re talking about you’d be smart to shut your pie hole.  I’ve never been clinically depressed, I’ve just been hit with garden variety blues from time to time, but I’ve watched beloved family members suffer and die from it, so I’m here to tell you:

1)  Clinical depression is not caused by “bad choices.”

2)  The conversation is not really about Robin Williams, except that his life perfectly illustrates how deadly the disease is.  He had it all, but money, wealth, and fame do not in any way make a person immune to a disease of the brain and spirit.

3)   I haven’t seen anyone express the view that Mr. Williams was “more important than anyone else.”  His high-profile death and the fact that he was loved by so many people have simply generated a national conversation that needed to take place.

4)  “Losing your pride” has little bearing on seeking help.  A person lost in the dark tunnel of clinically-depressive illness is mostly incapable of reaching out.  I’ve been told by people who’ve been there and survived it that it’s hard to even hear other voices or entertain possible options — for them, they’re in the process of dying and it takes everything they’ve got just to hang on.  Robin Williams DID seek help, and had been treated for depression for years, but just as with cancer, a “cure” was not easily come by.  Complicating matters, anxiety and depression are clinical symptoms of Parkinson’s, which he was also dealing with.

5)  Rather than being “cowardly” and “taking the easy way out,” a person in the throes of the illness finally succumbs to the relentless pain and suffering, concludes that the world would be far better off without him, and exercises the only option that seems to be left.

6)  “Right from wrong.”  What an incredibly judgmental thing to put on someone.  If you’ve never been in that long dark tunnel, hating yourself for who you think you are and what you believe you’re doing to your loved ones by simply being you, then you need to SHUT UP.

7)  “Don’t try to tune it out or you will be in for a rough time.”  If people with clinical depression could “tune it out,” they’d do it in a heartbeat.  And as for a “rough time,” it’s clear that you care very little about what they’re going through, so DO.PLEASE.SHUT.UP.

No one is immune to mental illness, so it would be in your best interest to stay off the soapbox.  Many people are born with a genetic predisposition to any number of spiritual and mental illnesses, and all the arrogance and condescension in the world won’t change that — that attitude just lets people feel better about themselves because it didn’t happen to them.

If you’ve been spared from the disease of depression, why not adopt the approach of the ALS people and do something to help raise awareness.  I just did.

 

*with appreciation to Philip Grecian

 

 

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