Challenges …

So have you done the ALS Ice Bucket challenge?  The videos I’ve watched are entertaining and attention-grabbing, which of course was the aim, and suddenly a little-talked-about disease is receiving the big focus and funding necessary for ramping up the research.  A diagnosis of ALS is a death sentence, regardless of age or station in life, so a cure would be a godsend. The conversation is in full bloom around the country, as intended.  We can’t really address things we have never faced, don’t know about, or are afraid to discuss.

Concurrent with the ALS wave, the death of a much-loved entertainer has sparked a dialogue on the realities of clinical depression and suicide, with far different results.  The ugly, willfully ignorant comments on social media have been crushing.  If a friend confided in you that he or she had received a diagnosis of Stage 4 cancer and had only a short time to live, would your response be something like “Wow, dude, that sucks.  But hey, quit whining.  Chin up!  Everybody has troubles.  Keep a good attitude, get out and enjoy life, it’s bound to turn things around.  You’ll feel better before you know it!”  If you say yes, I call bullshit.

I’ve seen a few negative comments about the ALS challenge — it wastes water (give me a break — your twenty-minute showers and ice chests full of beer are all totally justified, I suppose); it’s stupid and juvenile (but painting your face and body for a sports event, or wearing a block of cheese on your head isn’t); I don’t see the point (of course you don’t, it’s under your hat). But the response has been predominantly positive and lighthearted, and it’s fun to watch.

The conversation about depression and suicide is an entirely different story.  It’s a fact of life that our bodies get sick and die — it happens right in front of us so there’s no denying it.  But you could talk and type all you want and way too many people will still never comprehend that our brains and psyches get sick, too.  If you wouldn’t shame someone for having cancer or suffering a brain hemorrhage or getting hit by a drunk driver, why would you use shame as a tool against illnesses and injuries of the spirit?  And who the hell are YOU to do that in the first place?

Here’s an actual example of the complete nonsense being posted:

“The fact still remains he (Robin Williams) killed himself because he made bad choices in his life … society is only making a big deal out of him because of who he was and his money.  Wealth comes with challenges.  Depression is one of them.  … A person’s stature in society shouldn’t make them any more important than anyone else. … Seek out help.  It is out there but you have to lose your pride to find that help.  Don’t be a coward and take the easy way out.  Listen to the voice inside you that tells you right from wrong.  Don’t try to tune it out or you will be in for a rough time.”

What a steaming pile of panther whangy.*  If you don’t know what you’re talking about you’d be smart to shut your pie hole.  I’ve never been clinically depressed, I’ve just been hit with garden variety blues from time to time, but I’ve watched beloved family members suffer and die from it, so I’m here to tell you:

1)  Clinical depression is not caused by “bad choices.”

2)  The conversation is not really about Robin Williams, except that his life perfectly illustrates how deadly the disease is.  He had it all, but money, wealth, and fame do not in any way make a person immune to a disease of the brain and spirit.

3)   I haven’t seen anyone express the view that Mr. Williams was “more important than anyone else.”  His high-profile death and the fact that he was loved by so many people have simply generated a national conversation that needed to take place.

4)  “Losing your pride” has little bearing on seeking help.  A person lost in the dark tunnel of clinically-depressive illness is mostly incapable of reaching out.  I’ve been told by people who’ve been there and survived it that it’s hard to even hear other voices or entertain possible options — for them, they’re in the process of dying and it takes everything they’ve got just to hang on.  Robin Williams DID seek help, and had been treated for depression for years, but just as with cancer, a “cure” was not easily come by.  Complicating matters, anxiety and depression are clinical symptoms of Parkinson’s, which he was also dealing with.

5)  Rather than being “cowardly” and “taking the easy way out,” a person in the throes of the illness finally succumbs to the relentless pain and suffering, concludes that the world would be far better off without him, and exercises the only option that seems to be left.

6)  “Right from wrong.”  What an incredibly judgmental thing to put on someone.  If you’ve never been in that long dark tunnel, hating yourself for who you think you are and what you believe you’re doing to your loved ones by simply being you, then you need to SHUT UP.

7)  “Don’t try to tune it out or you will be in for a rough time.”  If people with clinical depression could “tune it out,” they’d do it in a heartbeat.  And as for a “rough time,” it’s clear that you care very little about what they’re going through, so DO.PLEASE.SHUT.UP.

No one is immune to mental illness, so it would be in your best interest to stay off the soapbox.  Many people are born with a genetic predisposition to any number of spiritual and mental illnesses, and all the arrogance and condescension in the world won’t change that — that attitude just lets people feel better about themselves because it didn’t happen to them.

If you’ve been spared from the disease of depression, why not adopt the approach of the ALS people and do something to help raise awareness.  I just did.

 

*with appreciation to Philip Grecian

 

 

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The care and feeding of The Madison …

This is the story of a boy and his dog.  And a young man and his dog.  And an old girl and “her” dog.  Turns out they’re all the same dog — a Maltese named Madison — and she’s led a fairly incredible life so far.  Her first story was happy … until it wasn’t.  The boy loved her, but his girlfriend didn’t, so while he was away working nobody took care of tiny Madison.  The young man took her in then and loved her and provided for her, and they were a good team.  But his life got really busy and Madison was spending a lot of hours alone.  SOOOO … the old girl talked him into letting the little peanut come stay at her house, at least for a while.  That’s love in its purest form, people, and Kim and I don’t take lightly the sacrifice he’s making for the sake of her health and well-being.

Miss Maddie will be ten years old in October, but she still looks like a puppy and remembers how to act like one.  She was coughing and gagging every day, and seemed listless, so on a hunch we changed her food and treats to brands that don’t contain wheat.  Thanks to a tip from a certified dog person, we also eliminated chicken.  The respiratory symptoms are going away, she’s sleeping fewer daytime hours, and she’s started initiating rambunctious play again and bringing us her dapper little green dinosaur so we can wrestle it away from her and throw it across the room.  She’s good as gold about potty habits, and she sleeps all night without disruption.  If left on her own she wakes up about 8am, just like I do.  Perfect!

Madison adores Kim, but she’s chosen me as her Person, which fills me with gratitude and gooey slurpy love.  Even when she has old-lady breath — which we’re also working on — I can’t get enough of her.  She goes with us on all the little errands that don’t require taking her into NO DOGS areas (the nerve!), and she’s a calm and entertaining passenger.  When we instead tell her “Maddie has to stay this time,” she looks at us with her big black eyes and takes it with good grace.  She doesn’t chew on things, or get up to shenanigans, and we never have a second thought about leaving her to roam the loft while we’re out.  She’s a little lady.  Her joy when we get home is something we didn’t know we were missing … and would have a hard time giving up now.

She’s an instant conversation-starter and makes friends all over town.  Jeez, to be so popular!  She still gets to go to The Farm to see her black Lab friend Mia and the three kittens, James, Red Molly, and Elsa … and her Big Guy when he’s there.  But it’s clear she isn’t really a farm girl, with her alabaster fur coat and frilly tail — she’s a princess and we’re happy to let her be exactly that, especially since she doesn’t have an attitude.  It’s a happy arrangement … except possibly for the Big Guy, who misses her when he’s home at night.

Maddie makes us laugh, and she brings out a tender grandparent-y thing in both of us that feels just right at this stage of our lives.  Thank you, Kevin, for having such a good heart — we love you.  And Madison will always belong to you, no matter where she might live out her days.

 

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Maya Angelou ~1928-2014

 

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Staying in the swim …

We’ve recently changed up our exercise routine because Kim needs to rest his ankle and shoulder, so he’s off the racquetball court and I’m out of Aqua Zumba for now.  Instead we’re swimming laps in the early mornings.  Our spring/summer schedule filled up when we weren’t paying attention, so the earlier start every day has been a good thing, and Kim’s owies are starting to like the new regimen.

One of my last class sessions was something I’m glad I didn’t miss — you can’t prepare for serendipities, you just have to be lucky enough to notice all the little nudges that take you through your days in style.

Okay, I need to tell you that when John was just out of college and starting his first career, he got involved with an organization that provided a social life for developmentally-challenged young adults.  His stories were funny and endearing, and it was clear right away that he had a gift for what he was doing.  He eventually went on to exchange his design career for one as an oncology RN, and he’s not only really good at that, his tenderness for his first clients has stayed with me.

So there was a morning a while back when I’d almost skipped Zumba class … again.  But hey, I showed up.  I was in the water warming up when the door opened and a young guy with killer abs walked in, followed by several men of mostly indeterminate age and clearly working under challenges of various sorts.  Nice Ab Guy asked if this was Zumba class and I said yes.  He asked the instructor if it would be okay for them to work out with us and she said of course!  So he helped the other guys tighten their waistband drawstrings, finessed ear and nose plugs, and coaxed them into the shallow end of the pool.  They were none too sure about the whole thing, but their shy smiles were to die for.  The eldest had scars over his back and arms that looked like severe burn damage and I prayed that some inferior human creature hadn’t hurt him on purpose.

The music cranked up, loud as always, and the new guys, with encouragement from a dozen or more mamas, got into it.  Ab Man was born to dance, and obviously to help people who need him.  The sweet guy with the burn scars was so sincere and earnest about trying to keep up with the moves, I had to put my face in the water to camo the tears.  One young guy spent his time looking around, blowing bubbles, and making the water splash big.   He may have had the best time of anyone.  Every glance at one of us asked “Is this okay?  Can I do this?”  When class ended we all told them to be sure and come back, but that didn’t happen before I dropped out.  I hope they remember their time with us as one of the really good days.

I’m lazy and whiny and it’s almost second nature for me to pick the easy way if there is one.  Those guys’ lives are hard in ways I’ll never experience, but they keep going and they’re as stoic as anyone I’ve ever seen.  I hope the people they encounter will be unfailingly kind to them and that even though they’ve been burned by life they’ll never lose those shy sweet smiles and their willingness to be and do and keep on giving.  I have no right to even ask that … but there’s so much they can teach the rest of us and we need them.

 

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More Memorial Weekend 2014 …

MemDay Collage

A Memorial Day tribute.

Robert Latta, US Army Infantry, S. Viet Nam. My husband for 34 years and John Latta‘s dad.

Kim Smith, US Navy, USS Somers (destroyer), coast of N. Viet Nam. My husband of 10 years and happily counting, and John Latta’s stepdad and friend.

Memorial Weekend 2014

My grandpa enlisted in the Army at the age of 17 and served at the front during WWI.  His six sons were all military men, Army, Navy, or Marines.  The three Marines, 18, 19, and 21 were in the Korean Conflict at the same time, in the same general location, and under miserable conditions.  All seven returned home intact in body and went on to raise families of their own.  Many of my cousins have also served with honor in the military and none have been lost to war — cause for much thankfulness as we remember all those who have been.

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It’s Make-It-Up-As-You-Go Thursday!

What a fun day so far.  Kim and I swam laps at 7:30, came home for coffee and breakfast, soaked in the spa tub, and then on his suggestion we rode our bikes over to his barbershop on Mass St. and I got my hair cut.  There are two long-time shops side by side, owned by one family, and they’re the real deal.  The only change from the good ol’ days is that now there are women barbers alongside the men, one of whom welcomed me into her chair and gave me exactly the cut I wanted.  I could have gotten it for only $6 plus tip since I’m of the senior persuasion, but it seemed cheap and cheeky to mention it, so I paid the going rate of $10.  You cannot beat that, try as you might.  Ten minutes in the chair, happy talk every second, and I’m on my way.  Next to me a young dad was getting his head shaved for the summer, followed by his little clone doing the same.  The two long-haired daughters giggled uncontrollably when I asked if they were having all their hair cut off as well.  One said, “No!  Girls don’t NEED haircuts!”  Sadly, I am no longer a girl.

We went two doors down for raspberry lemonade smoothies before riding a few more blocks to the salon so Mama could get a pedi.  With my shiny new watermelon toes we circled around to the optometrist’s office to schedule an appointment, then home.  Everything is an explosion of green, and the flowers and bushes are going crazy.

And now we’re waiting for it to rain, hopefully soon.

Tonight we’ll meet friends across the street at Pachamama’s to listen to jazz.  On the patio if it’s dry, indoors if it’s raining.  Clearly it needs to rain NOW rather than later.

Have a safe and happy Memorial Weekend!  And may all the right parts be rain free.  Speaking of “free,” there’s a reason …

 

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Every once in a while, time stands still …

Sometimes I love people beyond words. There’s a tiny girl in our neighborhood who is learning to walk. Every day now we see her out with her dad or mom, pushing a little Fisher-Price cart, slowly making her way down the sidewalk. This morning I was on the balcony dead-heading flowers and here she came with her mama. They waited ’til the coast was clear, then headed across the street our direction. About the time they reached the mid-point, a police car approached from the east and stopped well short of the intersection … and waited … and waited … and then when Little Miss had safely reached the curb the car rolled ever so slowly up the street. Nobody hurried her, not a shred of impatience was displayed down there on that ordinarily busy street. Something very important was taking place and everything else could wait. You rock, Lawrence, Kansas, you really do.

 

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Rawrrrr …

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March has come in like a lion … will it scamper away like a lamb?  Spring is out there somewhere, babies, long experience says so.  

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Come on in, the water’s fine!

They say — and just who the hell ARE they? — that we learn something new every day if we keep our eyes and ears open.  This week I learned that it’s possible to sweat underwater.

I’ve fallen in love with the pool.  Not the great pee-filled paradise of my youth, but a glittering expanse of cuddly clear blue water, marked off in lanes.  I am distinctly not an exercise lover but the pool has captured my heart.  I love the muted sounds and the clean saltwater smell; the silky feel of the water as I slip in for laps; the sunlight shining through the ceiling panels making fog hang in the air; the way I feel wrapped in cotton, alone in my head, nothing in front of me except the lane and the goal — to stay afloat.  And when class starts, I love the adorable instructors who crank the music and urge us to jump and kick and stretch and wriggle our cellulite, which they do not possess.

I love the women I meet there.  Many are likely older than I am, although who knows.  Some are far younger — new moms.  It’s a delightful bunch because they’re honest and irreverent and hilarious.  There’s a crankypants or two in class but I have to assume they’ve cultivated that for a while and aren’t likely to switch attitudes, so I leave them to their grumbling and their mad-faces and hang out with Jo and Barb and Andrea and Roxy and Pat and Sandy and assorted others who are just there to have a good time and keep moving.  All of us by now have sustained losses that have shaped us.  We don’t talk about it, we just know.  And of course we don’t discuss body shape, because we all have parts that are surrendering to gravity, legs that are melting into our ankles, wear and tear that dictates what we can and cannot do.

We’re a motley crew — we roll out of bed and show up at the gym, grab a shower, suit up and start swimming.  A lot of these gals have not only never invested in a Brazilian, they haven’t shaved their underarms since the Cold War — a very genuine and healthy practice, in my humble opinion.  We wear our baby-bellies like a freakin’ badge of honor, although to be honest mine’s become a too-many-carbs belly, which is what brought me to the pool.  We give it our best shot to keep up with the zero-body-fat instructor who’s winning a dance contest poolside or in the water with us every morning, and we grin and laugh and hoot when we finally find our rhythm.

In the water … nothing hurts much.  There’s no temperamental low back, no rickety shoulder, and the 7 Purple Minions of Fibromyalgia are in time out.  There are enough sore muscles later to let me know I used them, but that’s a good hurt and I welcome it.  It’s highly motivating that women in their 70s and 80s show up for personal torture day after day, and do it with a smile.  Surely I can manage at least that.  I do hope it will be a longterm relationship, the pool and I.  And I really hope carbs melt in saltwater.

The view from here …

Watching this year’s Winter Olympics has been a unique experience for me. It fully dawned this time that rather than a contest among nations, it’s hundreds of contests between worthy opponents who have spent most of their lives preparing for the moments in which we see them. Geographically speaking, the point is not which country won which medals, but which athletes earned the title of Best. I find that I see so much more if my eyes aren’t trained solely on the American athlete in the race. It’s very moving to see how each entrant has trained his or her body — every muscle, joint, and cell — to do the chosen feat. It’s poetry. And when the color and design of a flag take a back seat to individual effort, the games emerge as what they are: an incredible sampling of humanity, a dazzling parade of young faces, bodies, and spirits — people who will never again be quite this young and beautiful and perfect, but are just wise and reckless enough to squeeze the life out of Life as they streak past. God bless the world.

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No compromise …

Come at me, life …

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You have to start somewhere …

You don’t start out writing good stuff. You start out writing crap and thinking it’s good stuff, and then gradually you get better at it.

That’s why I say one of the most valuable traits is persistence.

— Octavia E. Butler

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Every word is true …

A declaration for today from www.positiveoutlooksblog.com.

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Is it Christmas yet?

Okay, so you remember when you got your first bicycle, right?  Probably Christmas or your birthday and everything already felt tingly with excitement and you couldn’t wait to see what happened next and then. There.Was.The.Bike.  Shiny and BIG, and instantly freedom stretched out in front of you and you could see yourself flying down the road or the street and all options were open to you.  Wow.  I remember mine — Santa brought it the Christmas I was five and left it in front of the tree just like he was supposed to.  I don’t even remember longing for it, but there it was.  Emerald green, with training wheels.  And BIG.  Christmas afternoon was warm.  My dad helped me hop on the bike and ran along beside me, touching the handlebar every once in a while.  A few trial runs and without a word he wasn’t there anymore and I was flying free!

That bicycle and I were nearly inseparable for years.  I rode it a hundred miles an hour on gravel roads, did wheelies, hauled my little sibs on the handlebars, slid into home with it, and have no memory of road rash.  When I went to college and then got married I left the bike in the round-top shed … and the truth is, it had been forgotten long before.  When my folks cleaned out the shed for their farm sale years later, there it was.  Rusty.  Battered and bent.  And so small!  Oh memory, you are such a lying mistress.

Fast-forward.  When Kim and I decided to move to Lawrence we knew we wanted bicycles.  His is graphite-colored and sleek.  Mine is lime green and cute.  I dreamed about it — buying it, choosing accessories for it, riding it around the neighborhood and on the trails.  The day we picked them up at the bicycle shop a block away, Kim zipped back to our parking lot on his, maddeningly confident.  I rode mine a few feet but felt shaky so got off and walked it the rest of the way.   He suggested a few trial runs in the lot, just to refresh our muscle memories, and that was going great until it wasn’t.  DISCLAIMER:  My sisters and John should probably stop reading right about …. HERE.

Without warning Judy and her cute lime green bicycle were on the pavement and there was definite road rash.  I’ll spare you the details.

Fast-forward some more.  After babying my normal list of aches and pains, plus the wear and tear of moving, and the humbling effects of falling on my face and other body parts, we decided that this was THE MORNING.  Time to get back on that horse and ride.  I wore the right clothes and shoes, strapped on my fierce-looking lime-green & black helmet and prepared for battle.  I was doing fine right up until the part where I got killed.  We rode for a half-hour or so, from one end of the parking garage to the other.  No traffic to watch for, just stationary objects like vehicles and cement pillars and such.  I was getting smooth on the straightaways … still shaky on the turns … but hopeful.  And then I was down.  Road rash.  Anger.  Total humiliation.  Instant discouragement.

Kim brought me upstairs and plunked me in the spa tub to soak the hurts out, and we talked.  And I remembered something — my equilibrium hasn’t been kosher since a little incident with a ruptured cranial aneurysm, three bleeds, and major repairs.  Or is it just in my DNA?  My grandma and my dad had some horrendous falls … and so have I.  But … only since that head thing, so yeah, maybe so.  Damn.  I’m still young.  This is not fair.

Okay, so first you cry.

And then you pick yourself up, dry yourself off, and get on with it.  I’m really not up for any more scrapes and bruises — my knuckles look like I’ve been in a bar fight, or so said the man in the bathtub with me — and I have other health realities to consider, so …

I’ve been online today checking out snarky-looking three-wheel bikes.  Oh lord, the lowering of expectations.  But never let it be said that I give up easily!  I want that freedom.  The sun.  The air.  The exercise.  It’s easy to give up riding a hundred miles an hour, or sliding like a little banshee in the driveway gravel, or God forbid, popping wheelies.  Not so easy to give up the sense of being a person who does everything, handles everything, lives life unafraid.

I was a caregiver for about sixteen years altogether for older people in my family whom I loved very much.  It made my heart ache to watch them give up, one by one, the things that brought sparkle to their days.  If I could take today’s wiser self back there now, I’d be oh so much more gentle … patient … so much more careful with their dignity.  They could still see themselves doing all the things they ever did, and it was a real thing.  Their occasional belligerance in the face of reality was inevitable.   I get it.

I’ll still live my life unafraid, no matter what — fear is a killer, it stops you in your tracks, so I’ll still find a way to do the things I really want to do … and I hope you will, too.  Right now there’s a slick Candy Red 3-wheeler with a Shimano six-speed that has my name written all over it.

Life is so sweet.  As I wrote what I thought would be the final sentence, I looked out my fourth-floor window and saw a little girl and her daddy rounding the corner at the intersection.  He’s on a big-guy bicycle, riding beside her unbelievably tiny purple bike, her matching purple helmet shining in the sun.  She’s the picture of confidence, standing on the pedals, legs pumping away.  Bless you, little blond sweetheart — life is GOOD!!

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