Not going down without a rant …
22 Dec 2014 6 Comments
My tolerance for whining is minimal, so I try not to do it.
Just the facts then.
If you’ve never experienced an auto-immune disorder there’s no way to explain it to you, but I’m willing to try because at least a dozen people on my Facebook feed, including me, deal with fibromyalgia and/or other auto-immune malfunctions on a daily basis. If you’ve somehow formed the opinion that we’re lazy, unmotivated, hopeless weenies, at least scan the information below. Most of us, like you, have dreams and plans, if only our bodies would get in the game.
Part of the frustration that comes with fibro is its unpredictability — one day you’re flying high, the next you can’t get out of bed. More often, the transition takes place between one hour and the next. A second frustration is that, plan as you might, there will be social opportunities missed and projects that never really get off the ground. A third, if you can call it a frustration, is that when flares hit they’re fairly relentless and the prolonged pain and hypersensitivity in bones, joints, muscles, tendons and other soft tissues let you know that everything is on hold for a while. A fourth is that while researchers are on the brink of several breakthroughs, the root causes of fibromyalgia remain elusive, ergo no effective treatment yet.
I’m blessed that my husband gets it and doesn’t see me as dead weight to haul around, but not all are so fortunate. It can be a lonely walk, so for friends and family who have to carry the burden of all we DON’T know about the auto-immune spectrum in general and fibromyalgia in particular, here are the fruits of my highly-personal, mostly-unscientific research into the disorder known among the ranks as “the invisible beating.” (Click pics to enlarge.)
Omigosh, you’re still here? You are either a really caring soul or you have a vested interest in the subject, or both. We can all help make things better for each other — that’s the truth. I’m glad you’re a part of that …
Sometimes you just go ahead and dance …
16 Dec 2014 3 Comments
So I noticed a weird little goober on my lower eyelid, oh, months and months ago and when it started to resemble an expanding snot bubble I made an appointment with a specialist — I’m not one to rush into things unless it’s something I really want. Anyway, today was as much fun as a poke in the eye with a sharp needle — biopsy done and now we have the inevitable wait. But even if it’s basal cell, as Dr. Specialist surmises, it won’t be a biggie — Dr. Specialist #2 will biopsy the whole thing in layers and if I end up with a divot in my eyelid Dr. Specialist #1 will Bondo it for me and my eye will be good as new. Also basal cell carcinoma doesn’t metastasize or send out runners. Yay!
Hey, it’s Tuesday, the day we dahnce, dahlings, and I say we get on with it. Choose your libation — I’m having NZ Starborough Sauv Blanc — and distract me while the anesthetic wears off and reality hits. That’s what friends do.
Just in time …
09 Dec 2014 Leave a comment
… for the annual “War on Christmas,” a handy flow chart from Christian blogger Rachel Held Evans, who writes “The whole story of Advent is the story of how God can’t be kept out. God is present. God is with us. God shows up—not with a parade but with the whimper of a baby, not among the powerful but among the marginalized, not to the demanding but to the humble. From Advent to Easter, the story of Jesus should teach us that God doesn’t need a mention in our pledge or on our money or over the loudspeaker at the mall to be present, and when we fight like spoiled children to ‘keep’ God in those things, we are fighting for idols. We’re chasing wind.”
Whatever your take on all of that, or mine, she also says, “For a long, long time Christianity was dominant in the United States and represented the civic religion of the country. But America is about the people who are here now, and that is a much more diverse group. And that’s good! It is time to stop insisting that everything revolves around us. Instead, let’s join the wider circle of the many traditions that make up our country. Besides, any Christian knows that Christmas is not about displays in shopping malls, or capitols, or schools, it is about a spiritual event that we honor most in our families and our homes.”
What scares you?
08 Dec 2014 5 Comments
Not BOOGA-BOOGA pants-crapping scared, where your skin crinkles up and makes little screeching noises with sparklers on the ends. More like what are you AFRAID of … that fundamental sense of dread that a cog will drop into a random sprocket somewhere and life will change. Fear of loss is a keen motivator — what else drives us with that same force?
But what if life changed and you lived through it? And what if that happened over and over ’til you realized how brave you were and then you just started doing things and saying things you didn’t know you could do and say? What if people didn’t get any of that at all and you didn’t care? What if you just started kicking ass, including your own, and life really did change and you wouldn’t change it back if you had the chance? WHAT IF? Not the question I want to be asking myself when I’m gearing up for the choir eternal. What if I’d done all those things I knew I could do? What if I’d let myself be who I knew I was? And to quote Captain Obvious, what if I’d just been nicer? Regret, let’s not go there.
Holy balls, I’ve survived too long to let fear force me back into the box, and by now he’s like an old friend anyway, sort of. You know, keep your friends close, your enemies closer, and your powder dry.
“I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise.” ~Dawna Markova
If I’m lyin’ I’m flyin’ …
03 Dec 2014 6 Comments
My grandma, who had to tolerate me a lot since I lived within rock-throwing distance and never knew when to go home, used to tell me that I was as happy as if I had good sense. That is, when she wasn’t accusing me of lacking the sense God gave a goose. Clearly she noticed a certain deficit in the reasoning department. Time and experience have predictably sharpened my perceptions, but if I have to base my mood on whatever life’s currently dishing out, I’m done. Hey, I KNOW things suck, generally speaking. I’m perfectly aware we’re all headed to hell in a disintegrating hand basket at warp speed. You know the drill: our atmosphere is imploding, our ground water’s drying up, our oceans are gunked up with plastic and sewage and a sick radioactive glow, the whole planet’s at war in one way or another, and disease and pestilence stalk the land. But I can’t shake the feeling that life is good, gosh darn it, all indications to the contrary. What can I say, things just have a way of working out, and it’s always too early to give up. To quote the great Lucimar Santos de Lima (it’s okay, even Wikipedia can’t find him), “It doesn’t hurt to be optimistic, you can always cry later.”
Making a list …
02 Dec 2014 2 Comments
So Tuesday around here is evolving into a day for thankfulness and dancing, but will one day a week be enough? I think not! And on that note, I hope you’re making only HAPPY LISTS this winter.
The giving of the thanks …
26 Nov 2014 2 Comments
A hearty … Boy-We-Sure-Put-One-Over-on-Those-Stupid-Indians Day … to one and all!
“Fine meal, chaps. Burrrp. The corn was a nice touch. Sweet little country ya’ got here.
Be a shame if somethin’ were ta’ happen to it.”
Playing for Time 
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