Not going down without a rant …

My tolerance for whining is minimal, so I try not to do it.

Just the facts then.

If you’ve never experienced an auto-immune disorder there’s no way to explain it to you, but I’m willing to try because at least a dozen people on my Facebook feed, including me, deal with fibromyalgia and/or other auto-immune malfunctions on a daily basis.  If you’ve somehow formed the opinion that we’re lazy, unmotivated, hopeless weenies, at least scan the information below.  Most of us, like you, have dreams and plans, if only our bodies would get in the game.

Part of the frustration that comes with fibro is its unpredictability — one day you’re flying high, the next you can’t get out of bed.  More often, the transition takes place between one hour and the next.  A second frustration is that, plan as you might, there will be social opportunities missed and projects that never really get off the ground.  A third, if you can call it a frustration, is that when flares hit they’re fairly relentless and the prolonged pain and hypersensitivity in bones, joints, muscles, tendons and other soft tissues let you know that everything is on hold for a while.  A fourth is that while researchers are on the brink of several breakthroughs, the root causes of fibromyalgia remain elusive, ergo no effective treatment yet.

I’m blessed that my husband gets it and doesn’t see me as dead weight to haul around, but not all are so fortunate.  It can be a lonely walk, so for friends and family who have to carry the burden of all we DON’T know about the auto-immune spectrum in general and fibromyalgia in particular, here are the fruits of my highly-personal, mostly-unscientific research into the disorder known among the ranks as “the invisible beating.”  (Click pics to enlarge.)

 

common fibro conditions

FibroFrame2

FibroFrame1

FibroFrame3

FibroFrame4

FibroFrame5

FibroFrame6

Omigosh, you’re still here?  You are either a really caring soul or you have a vested interest in the subject, or both.  We can all help make things better for each other — that’s the truth.  I’m glad you’re a part of that …

Image

6 Comments (+add yours?)

  1. mysticallunarose
    Dec 22, 2014 @ 20:37:11

    Thank you for your direct and truthful look at our daily struggle. The graphics are great and they enlarged for me on screen just by zooming in. Great blog thank you again.

    Like

    Reply

  2. Carrie Rubin
    Dec 22, 2014 @ 11:26:58

    Fibromyalgia is a difficult condition, especially since there is still much unknown about it. But at least we’ve made progress in addressing it and getting healthcare professionals to accept it (most of them–there will always be those who don’t believe in what they don’t have all the answers for). I have family members with it, and as you describe, it’s no picnic. Your infographics are great. Thanks for bringing attention to the condition.

    Like

    Reply

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