What they wanted…

Artist Credit: Bozorgmehr Hosseinpour
"We wanted to help people
We were smart and driven
We loved science and physiology, humans and disease
So we made a commitment
We signed up
It was an honor

We read thousands of pages
Attended hundreds of lectures
Pulled all-nighters
Took more exams than we thought possible
Finals week felt insurmountable
But it didn’t break us
It made us stronger

We learned statistics and biochemistry
Immunology and pathophysiology
We mastered genetics, virology and pharmacology
We read scientific papers and learned how to dissect them
Papers, not videos
It was an honor

We came running when you needed us
Literally, running down the hallway
To the ICU, the trauma bay, labor and delivery
I need help, you said
We can help, we said
It was an honor

There were moments that we thought would break us
Moments that drove us to journaling, to therapy, to nightmares
Broken babies.
Paralyzed children.
Dead pregnant mothers with three kids at home.
The wail of a mother whose son just died.
We bent but we did not break
We returned because you needed us
And we could help
It was an honor

Then there was fear
Fear of walking into our place of work
Fear that we’d be killed by going to work
Fear that we’d kill a loved one because of our work
There were tears and sleepless nights and anti-anxiety medications
But you banged your pots and pans
You sent us pizzas and called us heroes
You needed us
We could help
So we wore our masks, and our gowns, and our gloves, and our goggles
We decontaminated ourselves before going home and isolated ourselves from our families
We almost broke
It was an honor

How quickly the joy turned to defeat
Elation to rage
You’ve learned to do your own research now
You know better than we do
Gaslighting is your language
Your selfishness is astounding
You don’t want our help when we ask you to stay healthy
Yet you arrive at our doors begging for help at the end

You stole our resources
You hobbled our ability to help those who did what they were supposed to do
You killed our patients by filling our beds and using up our ventilators
We can’t help any more
You broke us
There is no more honor”

- Anonymous

A poem written by a physician after reflecting on the veteran who died in Texas because of the ICU bed shortage. 
Artist credit:
Bozorgmehr Hosseinpour

*****NOT A DISCLAIMER: I read yesterday that people are simply done with COVID and all its iterations, finished, through, sick of hearing about it, and I know in my bones that's a fact. But it doesn't change the equal and opposite fact that COVID doesn't care, it just wants to eat, sleep, live, and reproduce, and will for as long as we allow it. Our refusal to deal with facts is bringing our amazing, incredible, unmatched, behemoth of a healthcare apparatus down on our heads and the implosion will be... simply beyond. We've been warned... and warned... and warned... and we do not care. Sars-cov-2 is now part of the warp and woof of human existence, and the cost will be incalculable. "The fall thereof was great... "

There's nothing you nor I can do about any of it now, unless you're unvaccinated. You have the power to do that much and it isn't too late yet. The variants are becoming increasingly uglier, but the vaccinated are staying out of hospitals when they do fall ill. However tired you are of knowing about it, the death toll goes on relentlessly. And the people who once had the tools, energy, and incentive to help are finding other ways to stay alive. May whatsoever gods there be have mercy on us.

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Forward in small steps…

My grandmother once gave me a tip:

In difficult times, move forward in small steps.

Do what you have to do, but little by little.

Don’t think about the future 

or what may happen tomorrow.

Wash the dishes.

Remove the dust.

Write a letter.

Make a soup.

You see?

Advance step by step.

Take a step and stop.

Rest a little.

Praise yourself.

Take another step.

And then another.

You won’t notice, but your steps will grow more and more.

And the time will come when you can think about the future without crying.

***

Author: Elena Mikhalkova 

Photo Artist: Rosanne Olson

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On the stroke of midnight…

On the stroke of midnight tonight, you can resolve to be better, if you like…

to be fitter,

to be healthier,

to work harder.

On the stroke of midnight tonight,

you can resolve to become a whole new you,

if you so choose.

Or, you can take a moment to acknowledge what you already are.

All that you already are.

Because it’s a lot.

You’re a lot.

And you deserve to be seen.

On the stroke of midnight tonight perhaps you could congratulate yourself, for coping.

For breaking, again,

and for rebuilding, again.

For catching the stones life has thrown at you,

and for using them to build your castle that little bit higher.

You have endured my friend.

And I don’t see the need to resolve to become a whole new you,

when you are already so very much indeed.

Happy new year.

You made it.

Donna Ashworth

ART by Sherine Tolba

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Friends and family…

*

Once more into the fire, and tomorrow the answers start showing up… did we find the right nerve? Will fusion be the fix? Will I get my life back? Those are the operative questions, see what I did there?

None of this would be happening without Kim, who told me from the beginning that he was going to keep looking for whatever would stop the pain. I was 57 when he married me, skeletal from grief anorexia and fried from years of caregiving and loss, but still a house afire and totally into living life. Fast-forward to 2021 and increased degeneration from the accident I told you about… https://playingfortimeblog.com/2021/10/04/a-fractured-fairytale/ … has nearly immobilized me, so it’s gradually become a fact of life to be dealt with… will I stay on my own two feet, or is that becoming history?

It’s been a long time getting here, but fifty years after I first became acquainted with intractable nerve pain, we “know a guy.” There’ve been a lot of starts and stops along the way, most of them total dead-ends, but from here to Wichita to Scottsdale and points between we’ve checked out information and leads and promises and guesses, and it’s always been “We think this could help… we can try this procedure… welp… we tried.” A senior-staff spine surgeon, without so much as sitting down or making eye contact, told me in 2018 that nothing could be done to upgrade the state of my spine, so I came home with something settled in me that said “Don’t bother exercising, it only ramps up the pain.” That wasn’t a conscious decision, but the psyche is a powerful and mysterious universe and knows how to shut us down.

This fall, with things clearly falling apart in the pillar that holds me upright, Kim raised the ante and went in search of any helpful information available. A PickleBall friend told him about his wife, my age, who had robotic-assisted spinal surgery in Kansas City and is walking again without pain. Another PickleBall buddy told us about her own friend, my age, who had yet another KC surgeon do the same surgery, with similar positive results.

Boys and girls, medical robotics have arrived in the heartland and the Young Turks are on it. A primary factor in our move to Lawrence was the stellar medical community here and in next-door Kansas City, and that’s been proven wise over and over. We’ve had critical need for their gifts many times in the eight years we’ve lived in this Kansas cocoon, and nobody has disappointed us so far. And before we’d even settled in, Kim started making himself part of the neighborhood, the community… local… bringing us now to a personable young surgeon with a shiny resumé who knows how to “fix it.”

So tomorrow we’re going to fix it. Please keep a good thought.

Not this part…
not this part…
not even the trainwreck in the middle, just one key spot.

The x-rays are this side of obscene, but the amazing fact is that I stand straight… I just can’t keep moving for more than a few minutes.

Before they bring in the Happy Juice, I’m saying thank you to the guy who got me here, because it wouldn’t have happened without him. However this turns out, he never gave up the quest. When he married me I was under a hundred pounds, brown as a bean, and vibrating with life. Seventeen years later I’m over a hundred pounds, white from lack of sun, nearly deaf, evading seizures every chance I get, and on the cusp of living out my days on a Jazzy. Not sure why I’m even still hanging around, but the heartfelt hope is that after tomorrow it will start getting less tricky by the day to be here.

This isn’t the first time the KIMN8R has saved my life. He’s the cook who brought me back from the edge when we met, and he’s fed me irresistible food every day for all these years. He keeps me laughing, makes sure the adventure doesn’t end, holds me when I cry (a lot), lets me be me, end of story… and he believes in me. From the moment we met, it was going to be him or no one (I said no one, but never tempt fate), and against all odds he’s kept me putting one foot in front of the other.

While preemptively fighting my battles for me, he’s had his own challenges since January 2021, including 45 radiation treatments for an aggressive form of cancer, followed by months of other therapies and protocols, ongoing in 2022. He aced the radiation and went on to double his exercise quotient in order to maintain his conditioning for putting up with me… a job he says he was born to, and he’s so right. He’s at fighting weight and I couldn’t be more fortunate to have him as my cornerman. For six years he helped nurture Robert’s mother in her 90s and made her days far more interesting, fun, and lifegiving than if it had been just me all the time. He didn’t get to do that for his own family and he values it above price. In my world he’s The Guy for all the things.

In the current atmosphere, with relationships coming apart all around us, I remember people who watched two wounded human beings find love and happiness and said “I give it six months.” Have any of them ever felt a twinge over their cynicism, I wonder? Doesn’t matter…

I’m not sure most of #lfk knows Kim Smith has a wife since he’s always by himself, so I’m ready to get past tomorrow, and the three months after that, and whatever after that… and get out there with my ol’ man again.

Let’s do this.

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A gift…

From my heart to yours this weekend… for all who read my “working through anger” post yesterday, and all who need the sweetness this morning.

John sent this, saying it makes him think of Kimmers and me, which puts me on the edge of tears before the music starts. Finneas, beautiful soul, is a brother to Billie Eilish and has worked with her from the start of her career. At the end of the video, their family silently gathers together…

How do you know
If you’ve done everything right?
Is it the love you have at hand
Or the cash you kiss at night?

How do you know
If it was worth it in the end?
Did every second really count
Or were there some you shouldn’t spend
On anything but anyone you love?
Was this the life that you were dreaming of?
A movie night, a yellow light
You’re slowing down and days are adding up

So don’t waste the time you have waiting for time to pass
It’s only a lifetime
That’s only a while
It’s not worth the anger you felt as a child
Don’t waste the time you have waiting for time to pass
It’s only a lifetime
That’s not long enough
You’re not gonna like it without any love
So don’t waste it

I’m unimpressed
By the people preaching pain
For the sake of some small gain
In the sake of someone’s name

I’m unprepared
For my loved ones to be gone
Call ’em far too often now
Worry way too much about mom

Don’t waste the time you have waiting for time to pass
It’s only a lifetime
That’s only a while
It’s not worth the anger you felt as a child
Don’t waste the time you have waiting for time to pass
It’s only a lifetime
That’s not long enough
You’re not gonna like it without any love
So don’t waste it

It’s family and friends, and that’s the truth
The fountain doesn’t give you back your youth
It’s staying up too late at night and laughing under kitchen lights
So hard you start to cry

Don’t waste the time you have waiting for time to pass
It’s only a lifetime
That’s not long enough
You’re not gonna like it without any love
So don’t waste it

–Finneas O’Connell

Find your joy this holiday season. Look for a handhold and hang on…

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Anger vs Gratitude…

Woke up yesterday morning processing anger, straight out of a dream… Kim said the growls and grumbling at 6am, which he first mistook for snoring, were truly impressive. I repeatedly ran everything through the wood chipper all day but the fury remains untamed as of wake-up time this morning.

Also, write this down: I DO NOT SNORE. However, my dreams are a wonder to behold for scope and realism. Yikes.

The catalyst for the renewed angst seems to have been a combo of things… fresh statistics illustrating our dismal outlook in the face of COVID and its progeny… the fact that we find ourselves in this position due to humans’ inability to care about other humans… and a heartbreaking article about the burden we’ve placed on the medical world and the toll that’s taking.

The pandemic is as much an industrial-strength shock to the medical community as to the rest of us out here who of course know it all. Those medical people spent long years full of sleepless nights on little food, learning how to save lives, maybe even yours or mine someday. That’s their drive, to make people better and thus the world a teensy bit softer for the landings. And they’re good at it, really good, and they know things, and have seen and done things which you and I do not want to know, see, or do… nor will we, because we don’t have what it takes.

Medical personnel do the jobs they’ve been trained and educated to do on an equal-opportunity basis… pigment, religion, politics, and rude combative patients notwithstanding, they do their jobs. And then one day a snazzy new virus knocks on the door like the skeavy Orkin termite, and the game changes overnight. The breakout quickly becomes the pandemic the world has now been living in for two years, with all medical personnel, equipment, and hospital units required for the flood of sick and dying. It’s no longer about “making things better,” there’s no time. You keep the patient on your right alive, if possible, while losing the one on your left. The hours blur while you pull double shifts on your feet, clothed in trash bags and week-old masks because the supply closets are bare, praying you don’t catch whatever this thing is and end up dropping in your tracks. And then you watch that very thing happen to a colleague… and then another. And in a heartbeat, working in the medical field has become more about death than life.

Months have passed, you’re still pulling all your shifts and more, and now the monster has a name… Coronavirus. Or COVID-19. Or just COVID. There are even approved vaccines available… but not for you… because medical people, some of the first and longest-exposed, are not at the top of anybody’s priority list, which should have been an early indicator of where it would all end up. We only hurt the ones we love… or need like air and water.

Now you’re lonnnng months into the process, which feels less like a battle and more like an endurance race. You’ve gone from hero… “Doctor, please, help me!” “Nurse, I need you, please!” … to zero. “No, I DO NOT HAVE COVID, YOU’RE LYING!!” “It’s a HOAX! I can’t die!!” Nurses and doctors have been assaulted, insulted, spit on, screamed at, and blamed for letting people die of a scary disease those same people refused to vaccinate for. In the hopeless melee, the lofty goal of making things better dies a quiet death, and people we desperately need for our own selfish purposes are simply not there anymore. Their own institutions, in many cases, haven’t backed them up, haven’t provided the safety measures needed, haven’t compensated them for their heroic over & above sacrifices. The public, in too many places, has turned on them in ways we could never have imagined. These nurses and doctors see their lives trickling out, day by day, for a goal that no longer feels reachable… and for a populace that wouldn’t know the difference if the landings were made softer… and they’re finding other, less soul-killing things to do.

In parts of our nation where COVID and its variants are rampant, the bright shiny people who wanted to make a difference are walking away. Why risk death for people who don’t in the least mind if you drop in your tracks because they refused the antidote? Or because your employer doesn’t want to pay extra staff. Or “extra staff” is now a figment of the imagination. We won’t comprehend what we’ve lost until they’ve all taken their gifts elsewhere.

The pandemic is nowhere close to being over. Two thousand people a day are still dying in the “greatest nation on earth.” It hasn’t magically disappeared, it hasn’t been prayed away, it’s with us for the duration, however long Mother Earth lets us stay in the nest. As so often happens now, the minority chose for all of us, and life here will never be the same. I’m exorcising my rage today by paying homage to every person in the medical community who has tried, against insurmountable odds, to change the outcome, to save all lives possible, to make a difference. Thank you for BEING THERE and for using who you are to slow our slide to hell. Really, truly… thank you forever.

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